Tuesday, 28 July 2015

Pregnancy - The Early Days



The thing about finally getting pregnant after infertility is you’re simultaneously in a state of disbelief, excitement and terror.   You’ve spent years waiting to get to this point and consequently can’t possibly let yourself believe that what until now you’ve believed might be impossible has actually happened. 

After the embryo transfer in IVF there’s the infamous 2 week wait – for me it was actually about 12 days – where you have to wait to take a pregnancy test to see if the embryo has taken.  This is naturally torturous, wondering if all the injections, tests and pain will have been worth it.  I was incredibly blessed that I only had to do this once and the outcome was good, I can’t imagine how it must feel to have that wait and then get a negative result, my heart really goes out to those ladies.  For me this period of time was in a way overshadowed by being so horribly ill, in pain and ending up in hospital.  I felt also that being ill put more pressure on the wait because I felt so terrible I wasn’t sure I could ever bare to have another round of IVF.  I feel differently now, in hindsight I would go through that again without a second thought in order to get pregnant, but at the time it was hard to keep that perspective.
For Matt and I the 2 week wait was cut short by a day, I warned Matt that along with my other bloods they’d being checking my HCG (pregnancy hormone ) level and that they might just come and drop the results on us and I was right.  The night before we were due to test the Dr and the ward Sister came in, I think their exact words were “It looks like you are pregnant.” I can’t remember what I said, I don’t think I said a lot, I don’t think I really took it in.  I just remember when they left climbing out of bed and sitting of Matt’s lap (which wasn’t very easy in my fluid filled, bloated state) and hugging him and not saying anything, I remember Matt shedding a few tears. After the hideous, scary week that we’d had it was suddenly all worth it, somehow it didn’t matter how awful I felt anymore.  Feeling a bit better that evening we ventured down to the canteen, all I fancied as a celebration however was a bottle of apple juice and a new puzzle book, not how I would have imagined celebrating the news!
 
We still had to do the ‘official’ urine test from the clinic the next day and for both of us it didn’t seem entirely real until we’d done that.  Matt came into the hospital early at about 6.45am before work. I remember doing the test and then going to sit on the bed, putting the 3 minute timer on my phone and waiting before going back to get it from the bathroom.  It wasn’t quite the moment I’ve imagined so often over the past 3 ½ years because obviously we’d been pre-warned but still, there it was, that 2nd little pink line that I had wondered if I would ever see.



Worse than the 2 Week Wait

 

That moment you’ve imagined so long is amazing but it’s really just the beginning of another agonising wait which in many ways is even worse that the original 2 week wait. You have to wait another week to take a further test to confirm the result.  Then you have to wait until you’re 7 weeks for the clinic to do an early scan to make sure that the pregnancy is viable.   It’s horrible waiting for that scan because part of you wants to jump for joy but there’s this horrible part of you that knows that there’s a chance that you’ll go for the scan and they’ll tell you the devastating news that they are unable to find a heartbeat and the pregnancy is going to fail.  I was a little bit luckier than many people in a way as I was having regular bloods to monitor my OHSS and they also checked my HCG meaning I could see that this was going up nicely as it should in early pregnancy.  In other ways however the after effects of the OHSS made the wait more difficult as it gave me a lot of pain in my lower left abdomen which meant got myself a bit worked up that the pregnancy might be ectopic.

First Scan Day 


When you go in for the scan they naturally talk you through “I might not be able to find it straight away, give me a few minutes to have a look…” etc.  I could see the screen however and quite quickly I could make out the little heartbeat, I can remember half crying half squealing, “I can see it’s little heartbeat!”  It’s a difficult moment to describe. After so long of wondering if it was possible, wondering if my body was even capable of getting pregnant to see that little miracle right there is beyond words. It looked much like a little jellybean or a monkey nut, we’d already been referring to the baby as jellybean so that’s just stuck.  I could have just sat there all day and looked at that little beating heart. 

7 week scan, 10.3mm long 
 




More Waiting, Less Eating 

 

Of course as soon as you’ve had one scan been reassured the fear creeps back in and you then become fixated on the next scan.  I had a midwife appointment at around 9 weeks, this was the initially ‘booking in’ appointment which is a pretty dull series of form filling but yet it will felt ridiculously exciting.  It felt almost wrong to be going for a midwife appointment as if I was going through somebody else’s life, I couldn’t possibly be allowed to go for a midwife appointment, I felt like I must be just being ridiculous as if the midwife was going to turn round and say to me,  ‘I’m sorry you really shouldn’t be here.’  Once this appointment is done you’re then sent a date for your ’12 week’ scan, mine actually turned out to be booked for  13 weeks which is perfectly normal but still disappointing as I was just desperate to see my little jelly bean again.

This period of the pregnancy was pretty hard work. I wasn’t actually vomiting but felt nauseas almost all day, every day for a few weeks. I felt desperately hungry but at the same time I really struggled to find anything at all I fancied eating. I survived mostly on potato waffles, fish fingers, dry granola and oranges.  I felt so rough and tired and was having at least a couple of naps a day.  It was difficult to separate the early pregnancy symptoms from the after effects of the Ovarian Hyperstimulation Syndrome,  for example the exhaustion I was feeling was probably a combination of the two.  The nausea also made it difficult to get over the OHSS as I’d lost weight and a lot of fitness while I was ill but struggled to eat anything to get my strength back.   

I found this whole period very strange.  I’d waiting to be pregnant for so long I felt guilty complaining that I felt so unwell. I kept saying to my husband “I am happy, but I just feel so rough.”  I felt like I wasn’t allowed to complain because I was so incredibly blessed that the IVF had worked but at the same time I just felt like the ill feeling would never end!  In time things gradually started to improved, the nausea wasn’t so constant, it was more just in the mornings and then eased off throughout the day, I gradually got my appetite back and could eat more things. The only things I’ve really stayed off are cooked tomatoes (yuck) and even things that contain them like pizza, chocolate and tea.  It’s a very weird to be off tea and chocolate because these are 2 of my favourite things!  I hope my taste for them comes back quickly after the baby is born because I’m not sure how I’ll survive being a new mum without tea and chocolate!

Scare

 

I remained on progesterone pessaries until 12 weeks.  Around 10 weeks when giving this I started bleeding, initially it was probably around a tablespoon of bright red blood. I just remember saying out loud “Please God no,” running down the stairs and shouting at Matt in tears “I’m bleeding.” I knew that bleeding is quite common during pregnancy, I know more ladies who’ve had bleeding that those who haven’t but all this goes out of the window when it’s happening to you.  I felt like everything I’d hoped for, dreamed of and waited for for so long was about to disappear. I felt in a complete panic, in that moment a whole future of horrible fears rushes into your head. What would happening if I was miscarrying, how would I cope with having to go through the whole IVF process again after how ill I’d been the first time, how was I going to tell my parents who were so excited about being grandparents, I was just in a complete and utter panic, hyperventilating and crying.  Matt was absolutely amazing! He must have been terrified but he stayed calm, sat me down, calmed me down and looked after me.  There’s been a number of ladies from my church who’ve been praying for me for a long time and throughout all the IVF as well as my bible study group and my first thought was just to get them to pray so Matt contacted them for me. 
It was 7 o’clock in the evening which made things difficult.  I knew that if I went to the hospital they wouldn’t do anything overnight unless the bleeding was heavy enough to cause major concerns. I did ring the NHS 111 number and a nurse rang me back but they just confirmed this advice (NB: Of course it’s different for everybody and if you’re having bleeding I would always recommend seeking medical advice).  All I could think was “how am I going to get through the night,” I couldn’t possibly imagine getting any sleep at all.  Matt managed to calm me down and fortunately the bleeding didn’t last too long. I managed to get some sleep overnight but woke every few hours to have that horrible moment of having to see whether there had been any more bleeding.

After a whole night without any more bleeding I was feeling a bit more hopeful but was desperate for a scan to reassure me.  I managed to get a Doctors appointment for 9am but unfortunately they couldn’t fit me in at the hospital for a scan until 9am on the Sunday morning 2 days later.  I wasn’t annoyed about this level of wait, it seemed reasonable in a sense given that the bleed had been relatively short lived and wasn’t ongoing.  I probably would have managed to wait that long if it hadn’t been that I was going to see most of my extended family that weekend many of whom knew about the IVF and who I’d been intending to tell about the pregnancy. The thought of being there for the whole weekend with them not knowing and worrying was horrible so I decided to pay for a private scan at the clinic where I had the IVF.  I was feeling much more optimistic about things now but was still terrified and I remember sitting on the floor in my bedroom having a good cry that morning before pulling myself together for the scan.

When we got there for the scan there was still another horrible wait to be called in for the appointment then while she went through the paperwork it felt like forever. Eventually though we got to the scan and almost as soon as she got it up on the screen she said in a very jolly voice “well it’s doing gymnastics in there”!  The sense of relief to see that little baby wiggling around was immense, the scan wasn’t cheap but I can honestly say it was the best £80 I’ve ever spent!  It was amazing to see how much it had developed in 3 weeks since the last scan.  She couldn’t find any reason for the bleeding or any evidence of it meaning it was likely to be just a superficial bit of irritation to the cervix, perhaps for the pessaries.  It was an immense relief, I could have stayed and watched it wiggling around all day.  It was kind of laying on its back so you could see its arms either side.    

After paying for the private scan and feeling reassured I phoned up to cancel the NHS one as I didn’t want to take up a space that somebody else could use but the nurse said “don’t worry, keep this as well,” which was probably sensible as it meant they’d be a record of it on my medical records.  So in the end we got to see the baby twice in 3 days which was amazing.

2 scans around 10 weeks

 




Starting to Feel Human Again

 

As time went on and I approached the scan at 13 weeks I started to feel a lot better and was eating more normally. I also started to notice my body changing and around 10 weeks and had to give up on wearing my normal jeans undone and change to maternity jeans. The relief of putting them on and being comfortable was amazing! I did seem to show quite early from around 10 weeks, my theory is that because my muscles had all been stretched when I was ill and swollen with the OHSS I showed earlier than I would have otherwise. I didn’t mind though, I love my little bump and I struggle to walk past a full length mirror without stopping to have a look at it and I’m always showing it to Matt and going “Look!!!” It’s just so exciting to finally be here.

13 Week Scan

 

Lots of people told me that when they went for their scan the clinic was running late and that they were so bursting for the loo by the time the scan came it was a bit of a close call.  Consequently I was a held back a bit on the drinking immediately before the scan. This then meant my bladder wasn’t full enough and I had to go away, drink more and come back after 20 minutes, I didn’t mind really though, it meant I got to see the baby twice (they could see it the first time they just couldn’t do the measurements).  Everything was looking good on the scan and you could see it having a wiggle around and moving its arms and legs. I keep saying this but it was just so amazing after all that time to finally be there, having a scan and seeing our little baby. I don’t think I need any final words, this says it all…


 




Tuesday, 21 July 2015

Rest and recuperation following OHSS



I hadn’t intended to be away from my blog this long.  I had been planning to keep quiet about the outcome of the IVF and post some general thoughts on struggles with infertility. Not really sure why I haven’t been posting, I’ve certainly had the time as I’ve only been back at work a few weeks as it took me a long time to recover from the Ovarian Hyperstimulation. I just feel a bit like I’ve been on another planet for a while, living somebody else’s life not quite believing what’s happening. 

Before my announcement my last post was a couple of weeks after discharge from hospital with Ovarian Hyperstimulation Syndrome (OHSS). Things were gradually improving but still causing me quite a few problems. I was hoping the recovery would speed up from that point but it’s taken me a long time to get better. 
  

Pain – After getting out of hospital the pain gradually improved and became intermittent rather than constant with occasional really sharp pains particularly in my left side.  This meant I could come off the pain killers, which I didn’t like taking because of the pregnancy, and just manage the pain with rest and relaxation.  It was scary having the one sided pain as I was terribly worried that the pregnancy would turn out to be ectopic. It defys logic to me but an IVF pregnancy actually has a higher chance of being ectopic. In a normal pregnancy the sperm usually meets the egg somewhere in the fallopian tube and it then makes its way to the uterus and implants, but in an IVF pregnancy they put the embryo directly into the right place so I can't understand why it's more likely to implant in the fallopian tube than a normal pregnancy.   From when this first occurred to me to when I had my scan I was terrified, I knew it was more likely that the pain and lumpy feeling in my side was to do with my OHSS but until you know for sure there’s always that horrible chance in the back of your mind.  It probably took about 4 or 5 weeks after coming out of hospital for this pain to subside completely, it was uncomfortable but probably useful in a way as it made me aware that though a lot of the swelling had gone down I still needed to be very careful not to do anything strenuous that might cause damage of bleeding.


Bowels – as much as I don’t particularly like to share this in the interests of it being useful information to other people going through the same thing I will.  One of the worst ongoing problems I had was with my bowels.  I’d feel constipated all day and then suddenly get excruciating abdominal pain that I knew was related to my bowels and have to run to the loo with terrible diarrhoea. There was a couple of times on car journeys (fortunately Matt was driving) when I had very close calls and literally had to run out of the car to the toilet.  Matt had a good laugh at me and I can see the funny side now but at the time it was hideous.  I really feel for people with chronic bowel problems for whom this can be a life long problem.   This continued for about 6 weeks  before it finally began to settle down properly, I've never been so excited to do a 'normal' poo!


Blood tests – The main problems with my blood tests after I left hospital were with my liver function and blood clotting, fortunately my kidneys, which can be a major problem in OHSS had held out.  As the swelling went down my liver function improved over a couple of weeks. The blood clotting – namely that my platelets were quite high – took a longer to settle.  This meant I continued with blood thinning injections – Dalteparin – for around 8 weeks after leaving hospital.  OHSS makes you higher risk of deep vein thrombosis – blood clots in your legs – that can be very dangerous if they shift into other parts of your body so this, combined with the high platelets meant more daily injections into my stomach.  My GP was unclear on when to stop these and was in the process of getting advice from my IVF clinic however when I was about 10 weeks pregnant I had some bleeding.  I couldn’t get hold of my of the GP I had been seeing at the time and though I did see a different one I wasn’t sure that anybody else would have in depth enough knowledge on OHSS to really advise me so I took the decision for myself, I knew my blood tests were normal and my symptoms and swelling had settled down so I decided to stop taking it.  I would not however advise anybody else to stop such drugs without medical advice.  I spoke to my GP a few days later and she said the IVF clinic had advised to continue until 12 weeks but by this point I was about 11 weeks so she agreed in seemed reasonable to not restart them for 1 more week.


Energy Levels and General Fitness – In total I was off sick from work for 8 weeks and I’m now on phased return which finishes this week.  The main thing that made it take so long to get back was just how much of my fitness and energy the OHSS took. When I was really poorly and the first few weeks out of hospital I barely had the energy to do anything, I’d take the dog for short walks and sometimes I’d have to stop and sit down to rest and get my breath back half way – this is a big shock to the system for somebody who is normally really fit! I’d usually have a couple of naps a day and couldn’t get though the day without at least 1.  This just took such a long time to gradually get better, building up my fitness with gradually longer dog walks, trying to do little bits and pieces around the house to push myself a bit.  I’d lost weight while ill (once all the fluid had come off) and it took me to about 12 weeks pregnant to get back to my pre-IVF weight.  Putting on weight and improving my energy levels wasn't made easier by 8 weeks of morning sickness making it difficult for me to find anything I fancied eating but gradually things improved.  I still get tired easily but I’d say I’m pretty much at a level you’d expect for somebody who’s 15 weeks pregnant.

Sleep – I think I’ve already, unknowingly at the time, had my last full night’s sleep for a very long time. Back, sometime in April, perhaps just before I had the egg collection I had a full nights sleeps. Since then I have been up at least once at night, at the start many times a night with pain, now with needing a wee at least once a night. I guess it’s something that I’m going to have to get used to and it’s only going to get a whole lot worse when the little bub arrives. 


So this kind of sums up where I’ve been in terms of my recovery over the past  8 weeks or so since I last posted.  It’s difficult to pull this apart from what I’ve been experiencing in terms of early pregnancy but I wanted to make that distinction in order to try and help those who might be experiencing Ovarian Hyperstimulation Syndrome understand what to expect from their recovery, my next post will cover the really exciting bit!